Privacy Policy
Last Updated: January 18, 2026
Quick Summary
We respect your privacy. Here's the short version:
| What we collect | Survey responses, email (if you opt in), ZIP code for rep lookup |
|---|---|
| Why | To support vaccine injury compensation reform and keep you informed |
| Who sees it | Only us and essential service providers—we never sell your data |
| Your control | You can access, correct, or delete your data anytime |
| Contact | privacy@covidvaccineinjury.us |
Read the full policy below for complete details.
Table of Contents
1. Who We Are
Aletheia LLC, operating as U.S. Covid Vaccine Injuries ("we," "our," or "us"), operates the website covidvaccineinjury.us (the "Site").
We are a health policy advocacy organization working to reform COVID-19 vaccine injury compensation in the United States. We are not a healthcare provider, law firm, or government agency.
Our mission: Advocate for transferring COVID-19 vaccine injury claims from the Countermeasures Injury Compensation Program (CICP) to the National Vaccine Injury Compensation Program (VICP).
2. Information We Collect
Information You Provide Directly
| Data Type | When Collected | Required? |
|---|---|---|
| Survey responses | When you complete our survey | Voluntary |
| Email address | When you subscribe to updates | Voluntary |
| ZIP code | Representative lookup or survey | Voluntary |
| Injury details | Survey questions about your experience | Voluntary |
| Contact messages | When you email or message us | Voluntary |
Important: All information you provide is voluntary. You can use our educational resources without providing any personal information.
Information Collected Automatically
When you visit our Site, we automatically collect:
- Device information: Browser type, operating system, screen size
- Usage data: Pages visited, time on site, referring URL
- IP address: Used to determine general geographic location (city/region level)
- Cookies: Small files stored on your device (see Cookies & Analytics)
Information We Do NOT Collect
- Social Security numbers
- Medical records or documentation
- Financial information or payment details
- Biometric data
- Precise geolocation (GPS)
3. How We Use Your Information
| Purpose | Legal Basis | Data Used |
|---|---|---|
| Advocacy & research | Legitimate interest | Aggregate survey data |
| Email updates | Your consent | Email address |
| Representative lookup | Service delivery | ZIP code (not stored) |
| Site improvement | Legitimate interest | Analytics data |
| Respond to inquiries | Service delivery | Contact information |
| Legal compliance | Legal obligation | As required |
We do NOT use your information to:
- Sell to third parties
- Target advertising
- Make automated decisions about you
- Contact you without consent
4. Sensitive Health Information
Our survey may collect information about your health experiences, including:
- Whether you experienced a vaccine-related injury
- Types of symptoms or conditions
- Whether you filed a compensation claim
- Claim outcomes
How we protect this information:
- Anonymization: Survey responses are stored separately from identifying information when possible
- Aggregation: We only publish aggregate statistics (e.g., "73% of respondents experienced X")
- No medical advice: We do not use this information to provide medical advice or diagnosis
- Limited access: Only authorized team members can access individual responses
- Encryption: Health-related data is encrypted in transit and at rest
Your choice: You can skip any survey question you're not comfortable answering.
5. Information Sharing
We Share Information With:
| Recipient | What We Share | Why |
|---|---|---|
| Service providers | Technical data | Hosting, email delivery, analytics |
| Advocacy partners | Aggregate data only | Coordinated reform efforts |
| Public | Anonymous statistics | Educational content, advocacy |
| Legal authorities | As required by law | Legal compliance |
We Do NOT:
- Sell your personal information
- Share individual survey responses publicly
- Provide your contact info to political campaigns
- Share data with advertisers
Advocacy Partners
We work with allied organizations advocating for vaccine injury compensation reform, such as:
- React19
- Vaccine Injured Petitioners Bar Association
- Other 501(c)(3) and 501(c)(4) health advocacy groups
When we share with partners, we share aggregate, anonymized data only (e.g., "12,000 survey respondents support VICP transfer"). We do not share your email, name, or individual responses without your explicit consent.
6. Third-Party Services
We use the following third-party services:
| Service | Purpose | Privacy Policy |
|---|---|---|
| Vercel | Website hosting | vercel.com/legal/privacy-policy |
| Payload CMS | Content management & survey storage | payloadcms.com/privacy |
| Google Analytics | Site usage analytics | policies.google.com/privacy |
| Google Civic API | Representative lookup | policies.google.com/privacy |
These providers are contractually obligated to:
- Process data only as we instruct
- Maintain appropriate security measures
- Not use your data for their own purposes
7. Cookies & Analytics
What Are Cookies?
Cookies are small text files stored on your device that help us understand how you use our Site.
Cookies We Use
| Cookie Type | Purpose | Duration | Required? |
|---|---|---|---|
| Essential | Site functionality | Session | Yes |
| Analytics | Usage statistics | 2 years | No |
| Preferences | Remember your choices | 1 year | No |
Google Analytics
We use Google Analytics 4 to understand:
- How many people visit our Site
- Which pages are most viewed
- How visitors find us (search, social, direct)
- General geographic distribution of visitors
What Google Analytics collects:
- Pages viewed and time on page
- Device and browser information
- Approximate location (city level)
- Referring website
What it does NOT collect:
- Your name or email
- Survey responses
- Any information you type into forms
Managing Cookies
You can control cookies through:
- Browser settings: Most browsers let you block or delete cookies
- Google Analytics opt-out: Install the Google Analytics Opt-out Browser Add-on
- Do Not Track: We honor Do Not Track browser signals
Note: Blocking essential cookies may affect Site functionality.
8. Data Security
We implement industry-standard security measures:
| Measure | Description |
|---|---|
| Encryption in transit | All data transmitted via HTTPS/TLS |
| Encryption at rest | Database encryption for stored data |
| Access controls | Role-based access, principle of least privilege |
| Secure hosting | Enterprise-grade cloud infrastructure |
| Regular updates | Security patches applied promptly |
No system is 100% secure. While we take reasonable precautions, we cannot guarantee absolute security. If you believe your data has been compromised, contact us immediately.
9. Data Retention
| Data Type | Retention Period | Reason |
|---|---|---|
| Survey responses | 7 years or until legislation passes | Historical advocacy record |
| Email subscribers | Until you unsubscribe + 30 days | Communication + grace period |
| Analytics data | 26 months | Google Analytics default |
| Contact inquiries | 3 years | Follow-up and records |
| ZIP code lookups | Not stored | Processed in real-time only |
After retention periods expire, data is either deleted or anonymized so it can no longer identify you.
You can request early deletion at any time (see Your Rights).
10. Your Rights
You have the right to:
| Right | Description | How to Exercise |
|---|---|---|
| Access | Get a copy of your data | Email us |
| Correction | Fix inaccurate information | Email us |
| Deletion | Have your data removed | Email us |
| Portability | Receive data in a common format | Email us |
| Opt-out | Stop receiving emails | Unsubscribe link or email us |
| Withdraw consent | Change your mind anytime | Email us |
How to Exercise Your Rights
Email: privacy@covidvaccineinjury.us
Subject line: "Privacy Request - [Your Request Type]"
What to include:
- Your name (if you provided it)
- Email address associated with your data
- Specific request (access, deletion, etc.)
Response time: We will respond within 30 days. Complex requests may take up to 45 days, and we'll notify you if we need more time.
Verification: We may ask you to verify your identity to protect against unauthorized requests.
11. State Privacy Rights
California Residents (CCPA/CPRA)
If you are a California resident, you have additional rights:
- Right to know: What personal information we collect and why
- Right to delete: Request deletion of your data
- Right to opt-out of sale: We do not sell personal information
- Right to non-discrimination: We won't treat you differently for exercising your rights
- Right to correct: Fix inaccurate information
- Right to limit sensitive data use: Control how we use health-related information
To exercise California rights: Email privacy@covidvaccineinjury.us with "California Privacy Request" in the subject line.
Virginia, Colorado, Connecticut, Utah Residents
Similar rights apply under your state's privacy laws. Contact us using the same process.
12. Children's Privacy
Our Site is not intended for children under 13.
We do not knowingly collect personal information from children under 13. If you are a parent or guardian and believe your child has provided information to us, please contact us immediately at privacy@covidvaccineinjury.us and we will delete it.
If you are between 13 and 18, please get your parent or guardian's permission before providing any personal information.
13. International Users
Our Site is operated in the United States and intended primarily for U.S. residents.
If you access our Site from outside the United States:
- Your information will be transferred to and processed in the U.S.
- U.S. privacy laws may differ from your country's laws
- By using our Site, you consent to this transfer
For EU/UK residents: We process data based on legitimate interest for advocacy purposes and your consent for communications. You may have additional rights under GDPR—contact us to exercise them.
14. Changes to This Policy
We may update this Privacy Policy to reflect:
- Changes in our practices
- New features or services
- Legal or regulatory requirements
How we notify you:
- Minor changes: Updated "Last Updated" date
- Material changes: Email notification (if you're subscribed) and prominent notice on our Site
Your continued use of our Site after changes constitutes acceptance of the updated policy.
15. Contact Us
Questions about this Privacy Policy?
| privacy@covidvaccineinjury.us | |
| Website | covidvaccineinjury.us |
Aletheia LLC
Operating as U.S. Covid Vaccine Injuries
We aim to respond to all privacy inquiries within 5 business days.
This Privacy Policy was drafted to be transparent and easy to understand. If anything is unclear, please don't hesitate to ask.